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Current Comments:
Post number:
32
6th of January 2009 03:24 AM by Jill
Please accept my sincere sympathy. So young, so sad.
Post number:
31
31st of December 2008 06:52 PM by xxxxx
i never knew helen nor heard of her till calender tv - i know what its like being poorly -waiting to be accepted on the list - having to pass medicals by the panel - waiting for the call - hoping it goes thro - no problems or false calls no colds on the day
i have met the lung transplant team - i am now 14 years on since my sinlge lung transplant
i never met helen but i know the feelings and worry
Post number:
30
29th of December 2008 04:45 PM by Laura Lonsdale
Hi,
I knew Helen from First National.
I'm really sorry to hear that Helen has passed on, and would like to pass my condolances onto her family.
Helen was a beautiful person, and we will all miss her.

Laura Bennett
Post number:
29
28th of December 2008 09:09 PM by Stuart Ritchie
Hi,

I knew Helen from Lombard a while back. We hadn't really been in touch since then, but she had been in my thoughts since I knew she was ill. She was a vibrant, happy person who I wish I knew much better.

I wish all Helen's family and friends well and I hope you can all feel better than you do right now as quickly as possible. I've lost someone early and I know how hard it is and how unfair it feels. In your case, I hope the relief from Helen's illness going away is some comfort.

With love,
Stuart Ritchie
07884 311737
Post number:
28
18th of December 2008 11:39 PM by Jill
Hi, I just found your web site and feel so very bad for you. I hope so much that you will soon get your transplant and will be able to enjoy life again with your family.
Merry Christmas to you and yours from new Hampshire U.S.A.
Post number:
27
16th of November 2008 02:50 AM by Lu Lawrence website: http://happy-tobme.blogspot.com
Hi my lovely...just a quick message to say I came home yesterday and all is well. I have a long long road to recovery ahead as ended up in ICU 3x and so I have lost a lot of muscle tone and my appetite has plummeted. I am working on this though. I read ur blog and was saddened to read that u are really experiencing a difficult part of the disease. I know how desperately you need that lucky call and I am always thinking of you!!! Dianne is looking good...she was more colour in her face and is just an amazing woman!! Keep a strong heart and mind (if u can).

Loadsa love and xxx's

Louise xxx
Post number:
26
28th of October 2008 11:15 AM by Graham Brushett website: http://graham.brushett@yahoo.co.uk
Good morning Helen - two years ago my wait came to an end after several years of struggling as you are now. I received a simultaneous heart and kidney transplant. I now work to challenge the complacency that exists in relation to donation of all types. Please get each of your friends to make sure that every acute hospital has set up a donation committee with a donor champion. This is one of the demands of the Organ Donation Taskforce that might just save your life. People generally do not understand that Britain still has the death penalty for anybody waiting for a heart/lung/liver/kidney/pancreas transplant. Everyone has the right to a transplant if clinically needed - we ALL have the responsibility of being donors - everyone has the potential to save you. Keep fighting. Graham
Post number:
25
25th of October 2008 04:22 PM by Lu Lawrence website: http://www.happytob-me.blogspot.com
Hi my lovely
Ur website is top dollar and I am so proud of you. this was what i had hoped to do about pulmonary fibrosis...have accessible one stop shop info that is difficult to get otherwise! I hope that you are getting a little better sleep?? even in the days? i am back in itu i cant see dianne shes about 9 bays away from what my mum says. ive passed notes and her hubby gave mum and i a copy of her and ur recent article. u will get ur call my love, i do mention u so they dont forget!!! I think im the only one in itu with a laptop, had to fight a fair bit but got there in the end. will send u a nice long email over weekend...love u lots with dots!!!!
Post number:
24
28th of August 2008 01:16 PM by Dan Nicholls
hi helen,
i think this website u have created, giving everyone a view into your life and how ur familys lifes are affected is very commendable. i also think it reflects ur strong character and great personality. u are truly an inspiration to others, im positive that all will turn out as hoped for by everyone, thinking of you loads, love dan.xxx
Post number:
23
27th of August 2008 02:03 AM by Emma Harris website: http://www.livelifethengivelife.co.uk
Hi Helen, just stopping by to say hello and that I'm thinking of you during this awful wait. Stay strong hunni, you WILL get that transplant. Everyone who has had theirs has been feeling just like you only an hour before their call came. I'm hoping so much that it is just around the corner. Take care xxxxx
Post number:
22
27th of August 2008 12:31 AM by Vicky
Hi Helen, I lost my father in february to a chronic lung diease he was 59. He wasn't able to have a transplant due to other health issues. I along with my mum and brother nursed him through the three years he was ill and know first hand how difficult it is for all parties involved. I have been reading your diary in the Sheffield Star every week. Stay strong and positive i wish you and your family all the luck in the world xxx
Post number:
21
25th of August 2008 08:13 PM by beth x
hey
love the website
and the piccys
see you soon
love beth
xxxxxxxxxxxxxxxxxxxxxx
<3
Post number:
20
24th of August 2008 12:38 AM by Kathryn Flynn website: http://www.2ndwind.org
Great website Helen!! And great news about Louise. Hope the real call is soon.
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19
22nd of August 2008 11:51 PM by Emma Harris website: http://www.livelifethengivelife.co.uk
Hi Helen, I'm Emma from Live Life Then Give Life. I came across your website today and think it is BRILLIANT!!! I passed the link on to Emily too, I think she's already emailed to say hi? Anyway I just wanted to say I'm thinking of you loads and hoping you get your new chance really soon. You have done so much to help raise awareness of the need for organ donors and are clearly an amazing lady. Would be great to keep in touch with you - my email address is emma @ livelifethengivelife.co.uk.
Well done again on this fantastic website!
Emma xxxx
Post number:
18
22nd of August 2008 03:50 PM by Scott Hibberson
Hi Helen,

What a fantastic website! It's nice to see technology being put to good use to help others facing similar hardships as yourself. I've been reading your diary (I sound like a nosey parent or something!) and was touched by everything you have to put up with on a daily basis. I hope you find a donor soon and all the best for the future.

Scott x

P.S. Did you finish the cert ed? Are you now 'certified', lol?
Post number:
17
21st of August 2008 08:39 AM by Rebecca McGuire
Hi Helen

I just want to say what an inspiration you are to everyone including my Dad. You have done a lot in such a short time to campaign for organ donation, many people are touched by your story and want to do something to help. I could never understand the pain and anguish your family is going through. Keep strong and never think that your efforts are in vain. I hope and pray the call comes soon! We love you xxx
Post number:
16
19th of August 2008 09:06 PM by ann dickens
hi helen ann here the web site is great ,it really brings it home to me an im sat here a bit tearful you know me the soft one ha.I took the boys to london on thurs and was reminded of the time we went and you made posh sarnies! just like you eh i really hope you get this much needed transplant lovley helen cos i would like to go to london again with my sis in law lts of love to you all xxxxx
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15
17th of August 2008 05:22 PM by Rachael Williamson
Helen, words cannot begin to describe how amazing you are. I've known you for a long time now and you've been both a friend and an employer, within this time regardless of how you have been feeling you have always supported, motivated and encouraged me throughout the highs and the lows.
You are a beautiful, inspirational, intelligent woman and i'm so proud that you have invested all these skills into a fabulous website.love you xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Post number:
14
16th of August 2008 05:42 PM by mandy alsop
hi helen just had good look at your web site its really good i know how much this kind of publicity helps you and others i will keep checking it for the latest news im so sorry and frustrated that your so ill helen and ive got to be honest a bit scared too its such a hopless feeling so god knows what its like for you john abbie and dan and all your family we hoping to come over when rob back at end aug please remember we love you lots and pray that youl get your chance for a better quality of life god knows you all deserve that give my little bro a big hug and abbie , dan and you too love from us all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Post number:
13
16th of August 2008 03:00 PM by katie exley
hi helen

I've just read through you're website and i am sat here in tears with the boys asking "what's wrong mummy" i have no answer for them other than i have a very poorly friend who i hope gets better soon. Joseph (4) said "mummy you can take her one of my dinasaur plasters to make her better" now i am laughing as well as crying i wish it was as simple s that. Take care helen xxxx
Post number:
12
16th of August 2008 12:15 AM by Pat Brunt website: http://pat.brunt@ntlworld.com
You are amazing!! You have done a fantastic job on the website. I honestly don't know anyone else who has more grit and determination to survive and get through this. Keep it up - we are so proud of you. Uncle Dave and I send you all our love and hope to see you soon. XXXXXXXXX
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11
15th of August 2008 09:57 PM by Ann Richardson
Helen, this is a fantastic website. Well done. I know what it must have cost you to put it together. I notice you say you want to write your story. I would love to help you write that - (it can be that book you keep telling me to write!!) I will get in touch soon to make a start on it. Keep smiling xxxxxx
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10
15th of August 2008 08:36 PM by Paula Mangnall
Helen, i have known you since 1999 when i started work at First National. You are an inspiration to all and are showing amazing strength in the face of such adversity. You have shown with this fantastic website that your talent and skills are endless!!
love n best wishes
Paula m xxx
Post number:
9
15th of August 2008 08:32 PM by Kathy York
Brilliant web site Helen, but then I'd expect no less :) You are one amazing niece and I am so proud of you.

Love

Aunty Katy xx
Post number:
8
15th of August 2008 07:42 PM by Alison Wright
Wow! Your website is great. I've not yet looked at every page but what I've read is really good and should help many people who have similar health issues.

I always read your blog in the Star newspaper and send you occasional messages on Facebook. I'll keep reading your diary and will keep my fingers crossed that everything improves for you very much in the short term.

Love & best wishes,

Alison
Post number:
7
15th of August 2008 07:39 PM by Paul Borrowdale
Alright Helen,
What a fantastic website and achievement you have made in such a short space of time, very you and very informative! This will be of huge benefit to people who aren't as fortunate to know you as I do, understand COPD and what this entails living with day to day and also importantly, the impact this has on rest of the family.
I cannot agree more with Sue M's comments below, you were a massive inspiration to me throughout my career achievements and personal development, and were always first to sort out my problems, which can't have been easy some of the time!
For that, I applaud you and know that others will benefit from your kindness and passion to not only be there as a friend but to raise awareness of COPD.

I think another visit is due soon !!

Paul x
Post number:
6
15th of August 2008 05:51 PM by Mary Eland
Helen, this is amazing. I hadn't grasped what it all meant to you and your family and seeing this is so upsetting but enlightening at the same time. I feel honoured to know you and hope that if ever I need to be, I can be as strong and as determined as you. keep up the brilliant work.
Love Mary
Post number:
5
15th of August 2008 05:44 PM by Dianne Wakefield website: http://wakefield224@btinternet.com
Well done Helen, it's easy to navigate and very informative. I must admit that I didn't fully realise what emphysema was, now I do. Please keep up the good work.
luv Dianne x x x x x x x
Post number:
4
15th of August 2008 03:41 PM by Sue Marsh
I would like to let everyone know who visits this site that Helen is one amazing person. I have known Helen a number of years now, and been through many ups and downs with her. If I had to sum Helen up in 2 words it would be "amazing" and "selfless". Despite what Helen is living with, when I visit she is more concerned with sorting my trivial moans out then dwelling on hers. At times she makes me feel very inadequate, when I see how she deals with everyting, but she always makes me feel very grateful that I can call her my dear friend! Keep up the good work Helen, love you loads!!!!
xxxxxxxSuexxxxxxxxxx
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3
15th of August 2008 03:40 PM by Louise Lawrence website: http://www.happytob.me.uk
Helen! This is fantastic...it puts my website down to shame!! (hope you've never looked at it!!) I

It is so good to have an information site. When I was first diagnosed I felt there was a lack of information and where there was, it was scattered all over the place.

People will appreciate this so much...well done!!!! You've inspired me to sort mine out!!!!

:-) xxx
Post number:
2
15th of August 2008 03:02 PM by Geoff Link
Hi Helen. See, another skill now - great website....well done. I hope it helps to keep you occupied. Another example of your great determination...what an inspiration you are!

lots of love

Geoff
Post number:
1
15th of August 2008 02:43 PM by Malcolm Cooper
Well done, Helen, it's a great web site and I'm sure that the links will provide beneficial help and hope to people like us with COPD.

I send you and your family my very warmest wishes for the future.

Malcolm (Single Lung TX June 1992)

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